OUR SPECIAL CHILDREN - SEE MORE ON OUR FACEBOOK PAGE
1 week ago

Macey is 2 and a half and was born with Pierre Robin Sequence. She has been tube fed since birth and had an artificial airway for 10 months. She had a cleft palate which was repaired in June 2018. She also has bilateral nephrocalcinosis and a cyst in one of her kidneys. She is probably looking at another palate repair this year along with speech therapy.

Macey’s mum wrote to us requesting an iPad to keep her occupied during her 1.5 hour long tube feeds a few times a day, so she doesn’t pull her ng tube out, or while they are waiting at hospitals or during tests

Wipe Away Those Tears are delighted to purchase an iPad and protective case for Macey at a cost of £315.

1 week ago

Aafi is 3 years old and suffers from a rare genetic condition.
He is unable to move around and needs a supportive wheelchair, due to his inability to sit up and his poor spinal posture.
Aafi is prone to frequent respiratory illnesses and chest infections. Hence he requires to be protected well, especially when being taken outdoors. His parents wrote to Wipe Away Those Tears requesting accessories for his wheelchair to shield him from the weather.
He also requires a specialist item to help with his core strength.

Wipe Away Those Tears are delighted to purchase these items for Aafi at a cost of £700.

2 weeks ago

SNAP (Special Needs and Parents) is based in Brentwood at The SNAP Centre, Pastoral Way, Warley, Brentwood, Essex CM14 5WF. Telephone 01277 211300

SNAP is an Essex charity that helps families with children and young people (aged 0 to 25) who have any special need or disability. No formal diagnosis or professional referral is necessary.

I am extremely proud to be an Ambassador of SNAP, as the services and facilities that they provide are exceptional.

Please read the newsletter below for further information

https://www.snapcharity.org/wp-content/uploads/2019/01/SNAPMatters_Spring2019FINAL.pdf

3 weeks ago

Luca is 3 years old. He was born with part of his brain missing, a condition called Agenesis of the Corpus Callsum, he also has a deletion in chromosome 3q. Because of this he has global developmental delay and is around 2 years behind. Luca also has hyper mobility and currently is only crawling independently. He does have a walking frame he uses inside, but he isn’t stable enough to use outside or for long periods of time.

His mum wrote to Wipe Away Those Tears as he requires a specialist car seat. We are delighted to purchase this at a cost of £600.

3 weeks ago

We would like to say a big THANK YOU to the Flitch House and all its customers for raising the fantastic amount of £440 for Wipe Away Those Tears. We are so grateful to everyone.

1 month ago

Anaya is almost 2 years old. She is diagnosed with HIE grade 3, cerebral palsy, epilepsy and Cortical Visual Impairment (CVI). Anaya is registered as severely sight impaired and needs specialist equipment to help her develop and stimulate what little vision she has.

Wipe Away Those Tears are delighted to purchase an IPad for Anaya so that her parents can use specialist apps designed for very young children, which can be used on a daily basis to help Anaya. The cost of this is £358.

1 month ago

Ayouna was born in November 2014. Her mum noticed she had a constant fist with her right hand at 3 months and knew something was wrong. She had an MRI scan that showed abnormalities on the left side of the brain and that she had cerebral palsy on the whole right side. Two weeks after the MRI Ayouna started having seizures. She was put on medication to try and control the seizures but this did not work and they increased to 80-90 daily.

Great Ormond Street operated on Ayouna and she had a left side hemispherectomy in April 2018. The operation took 8-9 hours and the results have been amazing as Ayouna has been seizure free. She is unable to walk or talk and has developmental delay. She is 4 years old but her brain is like a 12-18 month old baby.

Ayouna requires a specialist car seat to provide the correct support for her weak side, to help improve and balance her posture. Wipe Away Those Tears are delighted to purchase this at a cost of £2,600.

1 month ago

Eric has a condition called septo-optic dysplasia. He is registered blind but does have some useful vision in his left eye.

Eric requires medication throughout the day. The medication he is on is life sustaining, as Eric is at risk of adrenal crisis due to him not producing enough cortisol. He needs 24 hour care. He is in a wheelchair as he has a left-sided weakness and can only walk a very short distance. He only started to talk at the age of 12.

His mum wrote to Wipe Away Those Tears saying, “Eric is my only child and when he was born he was in SCBU for sepis. I feel Eric has literally been fighting since the day he was born and what I admire about him is that every day he has a smile on his face and he is happy and grateful for everything. He is just an amazing young man and I am so proud of him”.

Wipe Away Those Tears are delighted to grant a special wish for Eric and his Mum to have a trip away together at CenterParcs at a cost of £1,454. We hope that they have a ... See more

1 month ago

We would like to say an enormous THANK YOU to Sarah Robertson and Ellie Pearman for their incredible generosity in donating tickets to Disney On Ice so that we can grant a special day out for 7 families. We are truly grateful to you both xx

1 month ago

We would like to say a huge THANK YOU to Doddinghurst Infant School who did carol singing at Lakeside Shopping Centre and raised £100 for Wipe Away Those Tears. We are so grateful to everyone who organised this, the children who took part and to everyone that donated x

1 month ago

Aiden was born in June 2014, he suffered a traumatic birth and was deprived of oxygen for 27 minutes. He required extensive resuscitation and once stable was transferred to Addenbrookes for medical cooling. His little body was wrapped in an ice jacket for 72 hours to try and stop the spread of further damage to his brain and body.

Aiden was formally diagnosed with cerebral palsy at the beginning of 2017. He is on the severe end and is non mobile and non verbal.

His mum wrote to Wipe Away Those Tears saying, “Aiden recently tried out a Tomcat specialist trike and he loved it, the smile on his face shows how much he enjoyed it. We would love to be able to provide Aiden with a trike”.

Wipe Away Those Tears are delighted to purchase the trike for Aiden at a cost of £1,648.

1 month ago

We would like to say an enormous THANK YOU to Christine Hunt, Lady Captain at West Essex Golf Club and the members of the club who opted to donate money to Wipe Away Those Tears instead of sending Christmas cards.

We are truly grateful for the extremely generous donation of £700.