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1 day ago

Freddie Is 2 1/2 years old. He suffered HIE (a type of brain damage) at birth, which has caused him to have cerebral palsy. He has muscle spasms and doesn’t find any seating comfortable. Due to this he lays on the floor most of the day.

Freddie trialled a peapod seat and was more comfortable in that than any other seating he has ever tried.

His mum wrote to us saying, “Freddie doesn’t get to see much going on around him, due to not being able to sit and have that view. I want him to have the chance, as he is a sociable boy and loves attention. He would be able to join in a lot more with activities if he could sit up more”.

Wipe Away Those Tears are delighted to purchase the chair for Freddie at a cost of £1,122.

5 days ago

Winnie is 2 years old and has a rare condition called Osteogenesis Imperfecta. This is also known as Brittle Bones Disease. This ultimately means she fractures very easily and is classed as a moderate to severe level. She has bowed limbs, scoliosis and at 2 years old has fractured over 50 bones. Winnie came into the world with an arm and collar bone fracture and since is breaking bones every 4-6 weeks. People with this condition can literally sneeze and break a rib. The condition is not curable and is usually inherited.

Winnie has a random genetic mutation that has caused her to have this. Alongside this she also has a bleeding condition called Von Willebrands Disease. Again a rare form that has occurred in the same spontaneous way. This means she bleeds too much and her blood needs help clotting. The impact of these rare conditions means she has delayed development physically and mentally, she has spent a lot of time in hospital. Winnie has just learnt to sit ... See more

5 days ago

Bella-Rose was born at 24 weeks and is now nearly 2 years old. She is on 24hr oxygen, 24hr pump fed through the GJ peg and has a suctioning machine and other medical equipment. She has many complex medical diagnoses and it is hard to get Bella-Rose about outside the home.

Her mum wrote to Wipe Away Those Tears as she has seen a pushchair used by some families at Great Ormond Street, that has an attachment on the side that can carry all her equipment.

Wipe Away Those Tears are delighted to purchase the specialist pushchair at a cost of £1,600.

6 days ago

Winnie is 2 and has a rare condition called Osteogenesis Imperfecta. This is also known as Brittle Bones Disease. This ultimately means she fractures very easily and is classed as a moderate to severe level. She has bowed limbs, scoliosis and at 2 years old has fractured over 50 bones. Winnie came into the world with an arm and collar bone fracture and since is breaking bones every 4-6 weeks. People with this condition can literally sneeze and break a rib. The condition is not curable and is usually inherited.

Winnie has a random genetic mutation that has caused her to have this. Alongside this she also has a bleeding condition called Von Willebrands Disease. Again a rare form that has occurred in the same spontaneous way. This means she bleeds too much and her blood needs help clotting. The impact of these rare conditions means she has delayed development physically and mentally, she has spent a lot of time in hospital.

Winnie has just learnt to sit independently, however she ... See more

1 week ago

Ava was born in September 2015, having a rare genetic condition CHARGE Syndrome.

CHARGE is an acronym - each letter of the word relates to an area of the body where a potential problem can be found. Not all children have every issue but Ava has most:

C - Colobomas (hole in one of the structures of the eye)
H - Heart
A - Atresia
R - Retardation
G - Growth
E - Ear

Ava had a real tough start to life, she had to be resuscitated on delivery as she did not breathe spontaneously, her poor little body struggled to cope, Thankfully, the emergency doctor who was on that evening managed to incubate Ava, and it was not known at that point that she had a sub-glottal stenosis (50% narrower) and because of his skills gave her the chance she needed.

Visually Ava looked poorly and had what it appeared to be palsy affecting her left side of her face. She couldn’t close her left eye and had a notably protruding left ear and a real weak cry, but everything else seemed ok.

After a few very ... See more

2 weeks ago

Buddy-Lee is a twin. He was born at 30 weeks. At 3 weeks old he contracted necrotising enterocolitis(NEC). After life-saving surgery, he was left with 10cm of small bowel as over 20ft had perforated and he was left with short bowel syndrome. He went on to have four other surgeries.

His mum says, “Buddy-Lee has had sepsis more times than I can count. He has also had a major stroke. There are only 230 children like our little fighter. He spent 17 months in the Royal London Hospital and he is one of the longest paediatric inpatients In the U.K. He is gastrostomy fed for 19 hours a day as Buddy-Lee doesn’t eat much or drink at all. He was totally home TPN dependant via a Hickman line up until last September”.

Wipe Away Those Tears are delighted to purchase the sensory toys to help with Buddy-Lee’s development that have been requested by his mum at a cost of £200.

We received this reply from Buddy-Lee’s mum:

“We are so so so grateful for everything you have ... See more

2 weeks ago

Alex was diagnosed with leukemia and he had a mass in his head. He has undergone two bone marrow transplants.

His mum wrote to Wipe Away Those Tears as they wish to go to Legoland as a family.

Wipe Away Those Tears are delighted to grant this special wish at a cost of £300.

1 month ago

Grace is nearly 3 years old and is a very rare gem. She is the only one world-wide with her chromosome deletion and with this comes many different complexities and disabilities. Grace is on 24 hour care, feeding tube and emergency oxygen due to respiratory issues and requires a wheelchair as she is non-mobile and non-verbal.

Her Dad wrote to Wipe Away Those Tears as they had purchased a garden shed and painted and put carpet in it for Grace as a sensory room. Twice now it has been broken into and vandalised and the sensory toys stolen or broken.

Wipe Away Those Tears were delighted to purchase the items requested at a cost of £400.

Grace’s Dad said, “Unfortunately Grace is life limited and we don’t know how long we will have with Grace. It could be months or could be years, we treasure every day and make sure each day is happy for Grace. What you have done for my daughter is outstanding. The items purchased are all what make my daughter smile, thank you for ... See more

1 month ago

Wipe Away Those Tears are delighted to purchase a car seat for a little boy with cerebral palsy who has been placed in foster care. This will ensure that he is transported safely to and from school. The cost of the car seat is £150.

1 month ago

Ajooni is 3 years old and was diagnosed with B CELL Acute Lymphoblastic leukaemia in May 2018. She is on a 2 year treatment programme at Great Ormond Street Hospital.

Her parents had planned a trip to Peppa Pig World last year for her 3rd birthday, but she was diagnosed three weeks before the trip, so they had to cancel. She asked the whole year to go to Peppa Pig World, but her family were waiting to hit the maintenance phase of her treatment, as she is immuno suppressed.

She is now in cycle 2 of maintenance and as her 4th birthday approaches, Wipe Away Those Tears are delighted to have purchased a two day pass for the family at a cost of £222.

We received this lovely photo from her mum and an email saying, “We had a wonderful trip and Ajooni was literally speechless for the first few minutes with excitement. Many thanks for making this happen. We thank all the Wipe Away Those Tears supporters who help kids like Ajooni, to put a smile on their faces”.

1 month ago

Kessie is 8 years old and has just been diagnosed with Chronic regional pain syndrome. Within months she has gone from a sporty lively little girl, to someone that is in a wheelchair not being able to use her feet or hands.

Kessie at present is not able to attend school as she needs a EHCP, which they have been told could take months. Her mum is keen to keep her education up to date as much as possible.

Wipe Away Those Tears are delighted to purchase a touch screen laptop for Kessie that she can operate by using her knuckles. The cost of this is £435.

1 month ago

An email we have received:

We have a 19 month old daughter that’s had the worst start to life. Since birth my daughter Savannah has been in unexplainable pain all day every day. She stopped feeding completely at 7 weeks old and hasn’t regained this skill again fully. She is fully tube fed and it’s really effecting the quality of her life and stopping us doing things as a family as she’s so unsettled.

We have a five year old too and she is desperate for her sister to do things with her. Most of her ideas are written off, due to them not being safe for Savannah. A simple thing like swimming is not possible due to the risk of infection and a day out means she’s stuck in the buggy on her feeding pump.

Recently we have been informed of another problem with Savannah to do with mobility. This is currently being investigated but we’re trying lots of ways to correct a walking problem and strengthen her legs. One way we have found of doing this is allowing her to push ... See more