14 hours ago

Caitlin is 9 years old and has a rare genetic condition called Cri Du Chat syndrome. She was born prematurely with no other complications and after numerous hospital visits, she was diagnosed at 22 months. Her condition means she is non-verbal, has global developmental delay, sensory processing disorder and hypotonia. Caitlin is completely unaware of danger and needs constant supervision. She is a loving and happy little girl and loves the outdoors and swimming.

As she is getting taller and heavier, her Mum is finding it increasingly difficult to get her in and out of her car seat which she has outgrown.

Wipe Away Those Tears are delighted to purchase a specialist car seat for Caitlin at a cost of £2,274.

2 weeks ago

George is 22 months old. He was born with Congenital Heart Disease, and had a VSD repair when he was just 5 months old. Since his operation he had to be tube fed first via NG tube, and now he has a gastrostomy (Mickey Button) as of June 2018. He is visually impaired, he has a cleft palate and he has an eventration of the diaphragm which impacts his lung function. He was also diagnosed with a rare genetic disorder called Kabuki Syndrome, affecting 1 in 32,000 children, in May 2018.

His mum wrote to Wipe Away Those Tears saying, “George is very delayed compared to his peers, but he is one of the happiest boys you will meet. He needs a car seat that would support him, as he is still quite small and floppy due to his hypotonia. He has only just starting sitting up by himself in the last couple of months”.

Wipe Away Those Tears are delighted to purchase the car seat for George at a cost of £250.

2 weeks ago

Mair is 11 years old and has Rubinstein-Taybi Syndrome (RTS). She has poor muscle tone, hyper-mobility and severe learning difficulties. She is just learning to speak, with intensive help from the staff at her wonderful school.

Mair enjoys going cycling and her family would love her to be able to cycle independently eventually, but she is currently too weak to be able to do this herself.

Wipe Away Those Tears are delighted to purchase a specially adapted trike for Mair at a cost of £2,300.

3 weeks ago

Meekaal is two years old and has an undiagnosed genetic neurological disorder which causes severe developmental delays, visual impairment, epilepsy and feeding problems. He is entirely peg fed, has poor head control and doesn’t sit unsupported. Despite trying various medications, he still continues to have multiple seizures every day.

Meekaal is very heavy and tall for his age and his mum suffers from severe back pain and a hernia from lifting him. He is undergoing intensive therapy for three weeks and requires a special supportive seat and bath seat.

Wipe Away Those Tears are delighted to purchase the items at a cost of £690.

3 weeks ago

Nancy is 2.5 years old and has multiple diagnoses:
1. Congenital Heart Disease.
2. Pierre Robin Sequence
3. Cleft palate
4. Hypothyroidism
5. Scoliosis

The above comes with lots of appointments for hearing, speech, eye tests, regular bloods, scans and X-rays and her parents are struggling to keep her occupied whilst at all these appointments.

Wipe Away Those Tears are delighted to purchase an I-pad and protective case for Nancy at a cost of £338.

3 weeks ago

When we receive an email today like this, it makes all the work we do worthwhile:

My apologies for the delayed pictures (attached as promised). These pictures are just for your reference, I’d be grateful if they are not shared publicly please. 😊

I just wanted to update you....... literally after you sent the pram for my daughter, few weeks later I became unwell and had to run to A&E but was later admitted and they began treatment for suspected sepsis, (normal infection markers are 5 and below mine was 300!) the IV antibiotics did not work on me so I eventually had to undergo a 5 hour emergency operation (which if planned - would’ve only taken 1 hour!)

I fully recovered about few months later. Now my daughter even at 3 years old although still not unfortunately walking, you deserve to know your good deed of sending the pram has literally been a life saver!!!!!!! After my operation I felt really weak and felt on the verge of fainting at times, but the pram in a way acted like ... See more

3 weeks ago

Unite Is 12 years old. She was diagnosed with CHARGE syndrome at 2 weeks old, she is registered as severely sight impaired and has profound bilateral hearing loss.

When Unite was born she had no airways in her nose so had an operation at two and a half weeks old. This became blocked later; she went through trauma and was transferred to Great Ormond Street Hospital where stents were inserted. A tracheotomy was done when she was just over 2 months old and she had her first heart operation when she was 11 months old but it did not go well, her lungs collapsed and she needed another operation just before her first birthday. She had her third operation in 2011 and things settled a little after that.

Unite went to nursery when she was 3 and started specialist school at 4, she loves going to school. Despite these obstacles Unite is a happy child and is eager to learn.

Her mum wrote to Wipe Away Those Tears saying, “We live in a 2 bed house and Unite has her own room but cannot move ... See more

3 weeks ago

Ronnie is 10 years old and is diagnosed with Epileptic Encephalopathy - severe brain disorder, global development delay and hypermobility. Ronnie’s seizures are uncontrolled and severe, despite being on numerous medications and also having a VNS. He has multiple seizures a day and these have left him with numerous injuries, including fracturing his skull. The seizures restrict Ronnie’s everyday life and he has lost many skills, due to the impact the constant seizures over the last 5 years are having.

Ronnie has to have someone with him at all times. He can no longer ride his scooter, due to the drop attacks and it being too dangerous. Due to his developmental delay, Ronnie functions at around 4 years old, with severe speech and cognitive delay.

Wipe Away Those Tears are delighted to purchase a special trike for Ronnie at a cost of £670. This will enable him to participate in an activity with his family.

3 weeks ago

A family who we have helped are holding a fundraising event in aid of Great Ormond Street, Rainbow Trust and Wipe Away Those Tears. Please see details below.

1 month ago

Alicia is 15 and has cerebral palsy, global delay and sensory processing disorder, among other diagnosis. She finds it difficult in public places and the family garden is her safe haven.

Her mum wrote to Wipe Away Those Tears saying, “I have two other children, one of which has a disability. My husband works very long hours and we are unable to go out without him, due to the nature of Alicia’s disabilities, so the garden is like our trips out. Alicia enjoys swings as they have a very calming affect on her”.

Wipe Away Those Tears are delighted to purchase a special basket swing for Alicia at a cost of £1,138.

1 month ago

Ava is 2.5 years old. She has an undiagnosed genetic condition, hypotonia (muscle weakness mainly in her core) and she is unable to sit unaided or lift her head for long periods of time. She is also non-verbal and has global development delay and is visually impaired (registered blind). She also is on BIPAP at night.

Ava has sadly had 2 hospital admissions this last year and intubated twice for long periods of time in PICU. Each time Ava has fought back but it takes a while to regain her development to the level she was at.

Ava’s parents have been working hard with the local services and attend physio and visual stimulation. Her developmental teacher has identified specialist toys and equipment to help Ava.

Wipe Away Those Tears are delighted to purchase the items for Ava at a cost of £1,450.

1 month ago

Judah is 15 months old and has had quite a difficult start in life. Judah was born prematurely at 34 weeks, as he stopped moving in the womb for 12 hours. Once born he had a short stay in NICU. Everything was going well up until he started having seizures, he was then diagnosed with Infantile Spasms and PVL. Although highly likely he will develop Cerebral Palsy, Judah has come on in leaps and bounds with his development. Judah is sitting, crawling and pulling to stand. However as his torso is weak, he is having slight trouble standing alone.

It was recommended by a physiotherapist to purchase a Smirthwaite Walking Ladder, to enable Judah to practise sitting to stand and pulling to stand.

Wipe Away Those Tears are delighted to purchase this at a cost of £157.