OUR SPECIAL CHILDREN - SEE MORE ON OUR FACEBOOK PAGE
21 hours ago

This little girl is 5 years old and was born with a congenital dis-order; is pre-verbal and has diagnoses of epileptic encephalopathy, generalised hypotonia with joint hypermobility, globally delayed development, Isolated Bulbar palsy, unsafe swallow (she is gastrostomy fed) and visual impairment. She is totally reliant on her carers to meet all of her needs; she requires hoist lifting and re-positioning.

She requires a specialist chair for feeding and one that is multi-functional and could be used as a bed, chair or for side lying which would not only save space in the family home, but would also give her greater opportunity to be included in family activities downstairs.

She has recently learned to sit up unaided for a few minutes. The chair acts as a wedge and would support her to develop further core strength as well as allow her to be re-positioned to preserve her skin integrity, one of the main benefits of the chair being its pressure relief design. She currently has a ... See more

1 day ago

Ethan arrived early, having been born at 26 weeks gestation, and unfortunately this has left him with Cerebal Palsy, affecting his right side, and in particular his right leg. Ethan has just turned 4 and wears AFOs, and whilst these have helped him walk, he still lacks the core body strength to stand or walk without them. He also suffers with pain in his hips especially if he walks long distances as a result of him putting too much weight on his stronger side. He is prone to falling, and doesn’t have the fine motor skills other children of his age possess.

Wipe Away Those Tears are delighted to fund some physiotherapy sessions for Ethan at a cost of £1,000. Aside from building core strength, this should also help encourage Ethan to place more weight on his weaker side, and hopefully over time, help Ethan with the quality of his walking and reduce hip pain.

4 days ago

Tai is 3 years old. He was born with a congenital diaphragmatic hernia. The odds were stacked against him. His mum didn’t get to hold him until he was 17 days old, as he was so unstable. His diaphragm was repaired and his breathing support lowered. At 8 weeks old, 4 different hospitals and with a car full of medical supplies he was allowed home.

Tai has no left lung and half a right lung, this is because of the CDH. As he has poor lung capacity he has no oxygen reserves, so a simple cold to us is serious to him. He was on oxygen until summer 2019.
Tai is entirely tube fed, continuously for 22 hours a day. He suffers with severe reflux so is jej fed. Tai has a lot of hospital appointments (gastro, respiratory, surgical at GOSH, also with the GP, dietitian, physiotherapy, community nurse, speech and language and wheelchair support).

As Tai is getting older he is understanding environments more and it is getting increasingly difficult to distract him during ... See more

1 week ago

Bryoni will be 4 in April. She has Spina Bifida, Hydrocephalus, Chiari Malformation, urinary catheterization, neuropathic bowel and bladder, partial hearing loss.

Bryoni is paralysed from the waist down, but can knee walk. She had a spinal repair after birth and a VP Shunt was inserted to drain the spinal fluid from her brain. She then had to have a repair of the shunt due to malfunction, three months after insertion.

Bryoni is a wheelchair user. Her wish is to have a specialist trike so that she can go outside and exercise.

Wipe Away Those Tears are delighted to purchase the trike for Bryoni at a cost of £1,471.

1 week ago

Bryoni will be 4 in April. She has Spina Bifida, Hydrocephalus, Chiari Malformation, urinary catheterization, neuropathic bowel and bladder, partial hearing loss.

Bryoni is paralysed from the waist down, but can knee walk. She had a spinal repair after birth and a VP Shunt was inserted to drain the spinal fluid from her brain. She then had to have a repair of the shunt due to malfunction, three months after insertion.

Bryoni is a wheelchair user. Her wish is to have a specialist trike so that she can go outside and exercise.

Wipe Away Those Tears are delighted to purchase the trike for Bryoni at a cost of £1,471.

1 week ago

Bryoni will be 4 in April. She has Spina Bifida, Hydrocephalus, Chiari Malformation, urinary catheterization, neuropathic bowel and bladder, partial hearing loss.

Bryoni is paralysed from the waist down, but can knee walk. She had a spinal repair after birth and a VP Shunt was inserted to drain the spinal fluid from her brain. She then had to have a repair of the shunt due to malfunction, three months after insertion.

Bryoni is a wheelchair user. Her wish is to have a specialist trike so that she can go outside and exercise.

Wipe Away Those Tears are delighted to purchase the trike for Bryoni at a cost of £1,471.

1 week ago

Oakley was born at 35 weeks. He was floppy and was immediately transferred to the Royal London NICU. He spent a total of 17 weeks in intensive care ( including some time in Basildon Hospital NICU) and eventually came home with a diagnosis of Congenital Myotonic Dystrophy. He was discharged with hypotonia, an NG feeding tube and bi-pap at night. He is currently awaiting surgery at the Royal London for undescended testes and a possible PEG.

Oakley was one year old on 30th January 2020. He is under many teams but his main problem is his physical movement. The local physiotherapist has visited him but he needs a more intense physiotherapy programme to strengthen his limbs, and especially his core as he does not hold his head independently.

Wipe Away Those Tears are delighted to fund a private physiotherapist to assess and work with him to give him the best possible early physical intervention at a total cost of £1,000.

1 week ago

Huxley is 16 months old. He has Down Syndrome, which for him includes lower muscle tone in his core, making physical activities such as crawling, standing, beginning to take first steps that bit harder.

His mum wrote to Wipe Away Those Tears requesting equipment to aid with Huxley’s development. We are delighted to purchase the items at a cost of £750.

2 weeks ago

Georgianna will soon be 5. She has been diagnosed with Rhoa neuroectodermal syndrome, so far only one in the country. The main concerns are at present her visual impairment which is unrecordable in one eye, and the other eye acuity 0.9 with no peripheral vision, nystagmus and retinal dystrophy. She also has moderate hearing loss to one side.

Her mum wrote to Wipe Away Those Tears to purchase some items to help support her learning at school. We are delighted to purchase the equipment at a cost of £640.

2 weeks ago

Edward is 14 months old and a twin. He was born with Spina Bifida, hydrocephalus, Chiari malformation, a rare type of Hearing loss (Auditory neuropathy spectrum disorder) and a neuropathic bladder and bowel. This results in Edward not being able to move his legs, having to be catheterised throughout the day and night, he has delayed development and struggles with motor skills. Edward also does not have very good core strength.

Edward has been using equipment in his play therapy sessions which he really responds to. He has poor motor control and through his deafness, there are only certain things that catch his attention and help him develop.

Wipe Away Those Tears are delighted to purchase the equipment for Edward at a cost of £920.

2 weeks ago

Niall is 2 1/2 years old. He was born healthy and weighed a big 9lb 1oz. At around 5 1/2 months old when he was being weaned, he started being sick and his weight dropped off quite quickly. Niall was then referred to a paediatrician who did tests for gluten intolerance. When they came back normal she requested an mri scan and it showed a mass on the bottom of his brain.

Niall was blue lighted to Addenbrookes for another scan which showed a tumour. He was in 2 weeks later for an operation and the tumour turned out to be pilocytic astrocytoma which thankfully wasn’t cancerous and they removed it. Niall was then readmitted with hydrocephalus (water on the brain). They inserted a vp shunt to drain excess brain fluid, which he has to have for life.

His mum said, “It’s been really hard as a family, an emotional rollercoaster. He still doesn’t eat food, and he failed to gain weight, so a ng tube was put in so we could feed him like that to get nutrition and weight on ... See more

2 weeks ago

If you require advice and are looking for a new pushchair for your child, I want to share with you details of a company that we have used for many years to order from. We have always found them to be extremely knowledgeable, understanding and efficient.

Freedom for Kids is dedicated to providing information, support and mobility equipment to parents and carers of disabled children. We work directly with parents as well as health and educational professionals with a focus on helping to get the right equipment at the right time for every child and their family. Support services include providing quotations for parents and professionals and helping families to apply for charity funding and access NHS support. Our aim is to give disabled children and their families more freedom to be active, mobile and included, giving them a better quality of life.
Helpline No. 01670 458624 Mon-Thurs 9.30-4.00pm.
Email: info@freedomforkids.co.uk
Web: www.freedomforkids.co.uk